Did you know that clinical trials with diverse participants provide more broadly applicable and reliable results that help determine whether critical treatments are safe, effective, and can benefit a wide variety of patients?  For the neuromuscular disease...

The Centers for Disease Control and Prevention (CDC) reports that over 30,000 Americans are currently living with ALS, and an average of 5,000 new patients are diagnosed every year with this disease. To manage symptoms and ultimately obtain the best possible quality of...

No one should be punished for working, getting a promotion, receiving a pay raise, or saving for the future. For those living with a disability and relying on Supplemental Security Income (SSI) benefits, this is an unfortunate reality.Since 1984, SSI’s asset limits have...

Too many people living with a neuromuscular disease (NMD) have difficulty obtaining an accurate diagnosis. This “diagnostic odyssey” can take years or decades to resolve and leads to frustration and hardship for patients and their families who want answers and appropriate...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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