Did you know that every time children and their families cross state lines to seek care for a neuromuscular disease, the providers that offer needed medical care must continually reenroll in out-of-state Medicaid programs? Each time a family seeks care across state lines,...

For children living with a neuromuscular disease, access to safe and effective treatments is of vital importance – neuromuscular diseases can advance quickly, and without timely access to new treatments, children and their families lose precious time while waiting for these...

Disability benefits (including Supplemental Security Income, or SSI) provide critical support for families affected by a neuromuscular disease. However, stringent and outdated rules around...

Did you know that clinical trials with diverse participants provide more broadly applicable and reliable results that help determine whether critical treatments are safe, effective, and can benefit a wide variety of patients?  For the neuromuscular disease...

The Centers for Disease Control and Prevention (CDC) reports that over 30,000 Americans are currently living with ALS, and an average of 5,000 new patients are diagnosed every year with this disease. To manage symptoms and ultimately obtain the best possible quality of...

No one should be punished for working, getting a promotion, receiving a pay raise, or saving for the future. For those living with a disability and relying on Supplemental Security Income (SSI) benefits, this is an unfortunate reality.Since 1984, SSI’s asset limits have...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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