Access, Affordability and Representation in 2025
More than 133 million Americans manage a chronic disease. Whether you’re talking about chronic kidney diseases, asthma, diabetes, arthritis, hypertension, genetic and rare diseases or anything in between, many of the challenges are universal across disease groups.Healthcare...
Lower Costs, More Transparency Act (H.R. 5378) | Call to Action
Making Healthcare More Affordable and Transparent for Chronic Disease PatientsThe Lower Costs, More Transparency Act (H.R. 5378) seeks to improve price transparency, hold pharmacy benefit managers (PBMs) accountable, and invest in key healthcare programs that support...
Support Living Organ Donors by Backing the Living Organ Donor Tax Credit Act (H.R. 6171)
Support Organ Donors: $5,000 Federal Tax Credit Will Help With The Cost of Living Organ Donation People who donate their organs can save the lives of friends and family, but it can be an expensive act of generosity: Living donors can also face high costs, like paying...
Support H.R. 8261 to Protect Telehealth Access
Access to Telehealth Services Is Critical for Chronic Disease Patients:For individuals living with chronic diseases, accessing timely, effective healthcare is crucial. Telehealth has become a vital tool, providing patients with the ability to connect with their healthcare...
Stand Up for Rare Disease Patients: Support the ORPHAN Cures Act
The Inflation Reduction Act says that only special drugs for one rare disease wouldn't have their prices subject to government negotiation. But this might make it less likely for companies to try making these drugs work for more diseases — which could mean even fewer...