Congress may make their decision as early as Tuesday, March 11th!
We need your help! On March 10, 2025, Congress proposed the fiscal year 2025 Continuing Resolution, which includes a 57% cut to the Peer Reviewed Medical Research Program (PRMRP)—a program that has been instrumental in advancing myotonic dystrophy (DM) research. Over the past seven years, PRMRP has allocated approximately $24 million to DM research, significantly enhancing our understanding of both DM1 and DM2.
These proposed cuts would be a devastating setback, severely diminishing our ability to secure similar funding levels in the future and delaying the development of effective treatments and, ultimately, a cure.
📢 Congress votes soon! Act now to protect DM research funding!
🚨 What’s at Risk?
- Breakthrough Research – PRMRP-funded studies have uncovered key insights into DM, leading to promising treatment strategies.
- Therapy Development – Funding has supported gene editing and molecular therapies, giving hope to the DM community.
- Both DM1 & DM2 Impacted – Losing this funding delays treatments for everyone affected by DM.
- Time is Running Out – Families can’t afford to wait—every lost dollar means lost time toward a cure.
Other Federal Funding Cuts are Already Disrupting DM Research
Earlier this month, New York Senator Pat Fahy sat down with Dr. Andy Berglund, Director of the RNA Institute, to discuss how these cuts are impacting myotonic dystrophy research and institutions like the University at Albany, SUNY. Listen as they explore the ripple effects of reduced funding and what it means for the future of DM research.
A DM Advocate’s Voice: Tom’s Fight for DM Research Funding
I’m Tom McPeek from Ohio. Congress is proposing a budget that would reduce funding for CDMRP and PRMRP—one of the most important sources of DM research funding in the world, which has funded $24 million in DM research over the past 7 years.
Eliminating this funding will reduce the number of DM scientists in the field and delay life-saving treatments for our community. We must restore this research funding now.
Please join me in urging Congress to protect DM research funding. The lives of our community depend on you making your voice heard.
— Tom McPeek, MDF Advocate
📢 Take Action Now – Every Message Counts!
Tell Congress: Protect DM Research and oppose the proposed 57% funding cut to the PRMRP.
Your voice can help stop these cuts and ensure continued progress toward treatments and a cure for myotonic dystrophy.
✉️ Send Your Message Now!