The National Institutes of Health (NIH) recently announced a major reduction in grant funding that would have a catastrophic impact on research, especially in the neuromuscular disease field. NIH funding has led to amazing discoveries, including the underlying mechanisms of...

As Congress considers potential Medicaid reforms that will jeopardize the neuromuscular community’s access to critically important care and benefits, MDA Advocacy needs you to share your experiences...

Medicaid is a lifeline for millions – protect the neuromuscular community!Join the fight to preserve Medicaid! We cannot let Congress make cuts to Medicaid, impose expensive and burdensome work requirements, or limit eligibility in any legislation.Medicaid provides health...

In 2024, grassroots advocacy is more powerful than ever, thanks to a wide variety of technology options and the ability to connect with advocates from across the globe or just down the street. In this toolkit, we will delve into the fundamentals of grassroots advocacy and...

Disability benefits (including Supplemental Security Income, or SSI) provide critical support for families affected by a neuromuscular disease. However, stringent and outdated rules around...

We're excited to share MDA's new educational series, The MDA Advocacy Institute. These monthly webinars will provide advocates with grassroots skills, timely news on issues that are important to the neuromuscular community, and updates from Capitol Hill and Federal agencies...

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