Biomedical research is under threat.  Over the past couple of weeks, we have seen new directives and actions from the current Administration that threaten to halt progress in finding new therapies and potential cures for neuromuscular conditions. These threats include:

• The National Institutes of Health (NIH) recently announced a major reduction in funding indirect costs in grants, which would have a catastrophic impact on research, especially in the neuromuscular disease field.
• Impediments to grant funding reaching recipients due to canceled meetings, prohibition on technology transfers, and more
• Grants and projects that could benefit the neuromuscular disease community being paused or outright canceled
• Ongoing prohibitions on collaboration between Federal agencies and partners in stakeholder community
• And more.

Taken together, these delays and cuts would be disastrous for biomedical research. If fully implemented, current research will stop, clinical trials will shut down, and research staff will be let go. As we sit on the cusp of genetic medicine breakthroughs for many neuromuscular diseases, these impediments are all the more unacceptable.  

Tell your member of Congress to oppose these harmful cuts and impediments now!