Many individuals with spinal muscular atrophy (SMA) and their families rely on Medicaid for their access to healthcare, including in-home caregiving services provided by a nurse or personal care attendant (PCA). 

Children and adults with SMA describe Medicaid and their access to caregiving services as “essential,” “indispensable,” “necessary,” and “urgent" for all aspects of life, as highlighted in Cure SMA's Stuck Inside national caregiving report. Yet many individuals with SMA struggle to access the Medicaid caregiving services they need to maintain their health and independence. 

Your voice is needed to ensure that individuals with SMA and their families do not face cuts, caps, or other limits in accessing Medicaid and Medicaid caregiving services. 

Tell Congress to support people with SMA and their access to Medicaid and Medicaid caregiving services. 

ACT TODAY!

INSTRUCTIONS: when you enter your address information, and click on the "send message" button, the prewritten message will automatically be emailed to your Members of Congress. No other action is required. However, you can click inside the prewritten message to tailor it with your own connection to the issue, which Cure SMA may use for other advocacy purposes. Contact advocacy@curesma.org with any questions.