The health, independence, and safety of individuals with spinal muscular atrophy (SMA) and other disabilities are at stake with the looming caregiving crisis facing our country.

A 2024 Cure SMA report found that many individuals with SMA experience significant caregiving challenges: from eligibility barriers, confusion over state caregiving options, to difficulty finding caregivers and safety concerns if something happens to their family caregiver. 

The caregiving crisis facing people with disabilities is a “huge problem, and it’s not getting smaller,” as one adult with SMA put it. Congress must take steps to expand caregiver access and strengthen the direct care workforce. 

Ask your Members of Congress to act today!

INSTRUCTIONS: when you enter your address information, and click on the "send message" button, the prewritten message will automatically be emailed to your Members of Congress. No other action is required. However, you can click inside the prewritten message to tailor it with your own connection to the issue, which Cure SMA may use for other advocacy purposes. Contact advocacy@curesma.org with any questions.