The Lifespan Respite Care Program is a critical program for families and caregivers. The program was first enacted in 2006 to authorize coordinated state systems to provide accessible, community-based respite care services. Respite supports family caregivers of children and adults across all age groups, disabilities, and chronic conditions. As an essential component of home and community-based long-term services, respite services can contribute to healthier families and the health and well-being of caregivers and care recipients. This program was last reauthorized in 2020 and is up for reauthorization.
On May 23, the U.S. Senate Committee on Health, Education, Labor & Pensions approved S. 4325, the Lifespan Respite Care Program Reauthorization Act of 2024, which reauthorizes $50 million over five years for the program. This bill, supported by Senator Collins and Senator Baldwin, includes youth under 18 in the definition of family caregivers, making them eligible for services. The Senate bill contrasts with the House version, HR 6160, which does not include caregiving youth. Contact your Senators to urge them to support the final passage of S. 4325 when it comes to the full floor of the Senate.